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NEURO-ENDOCRINE-IMMUNE DISORDERS

Imagine waking up every morning feeling like a truck ran over you, if you manage to even sleep; experiencing bone-crushing fatigue so severe and debilitating that you can’t brush your teeth or comb your hair; having flu-like symptoms 24/7, including body-wide pain, excruciating headaches, brain fog, sore throat, fever, swollen lymph nodes, night sweats, sleep disruption, and disorientation; severe allergies to your environment; rashes, short-term memory loss, and chronic respiratory infections

Can you envision not being able to take care of your children/family and crawling in and out of bed because your pain and fatigue are unbearable? Of parking your car in your usual spot, but can’t find it an hour later? A refreshing shower is unbearable because the spray on your skin increases your pain. Imagine, not being able to walk or lift your head because the room has been spinning, nonstop, for days. Of going from doctor to doctor searching desperately to learn why you are so sick, but finding no answers. Are you going “crazy”? Blood tests conducted don’t indicate any known illnesses. Doctors say, “It’s all in your head. Here’s a referral to a psychiatrist. Envision being abandoned by family, husband/wife, and employers because you can’t function socially, sexually or be productive. Many are snickered at by neighbors and colleagues because they are too sick to join them in living a normal or demanding life.

Imagine you are a child/teenager suffering these symptoms. You will be forever scarred by the medical and school systems. You may never experience the joys of finishing college, getting married, having children, earning a salary for a job well done. However, it gets worse. Imagine after years of searching for a diagnosis, you find there is only one physician specialist in our state capable of treating CFS, and only a handful of specialists for FM. If your child has CFS, there is not one single pediatric specialist in Florida, and the school system will punish your child for missing school and you as the confused parent will be prosecuted for protecting your child. Imagine not getting disability payments from insurance policies or Social Security because these illnesses “don’t exist.”

These situations are a fact of life for millions of people who suffer with Chronic Fatigue Syndrome (CFS), Fibromyalgia (FM), and Gulf War Syndrome (GWS). These illnesses are syndromes affecting multisystems (neurological, endocrinological, and immunological) and are robbing patients of health and abilities. Current research is identifying them as neuroendocrineimmune disorders/dysfunctions, but still lacking specific biomarkers. CFS, FM, GWS are life-long (chronic)illnesses. There is currently no cure. Research funding is dismal. Of all illnesses researched by the National Institutes of Health (NIH), they rank towards the last 6 on their list.

Filed under fibromyalgia NEURO-ENDOCRINE-IMMUNE DISORDERS explanation scientific explanation chronic fatigue syndrome gulf war syndrome